The transforming care approach 

Transforming care is a national programme led by NHS England which is all about improving health and care services so that more people with learning disabilities and/or autism can live in the community, with the right support, close to home and have the same opportunities as anyone else.

The programme of work will ensure that families are:

  • getting the support they need to live long and healthy lives
  • being treated with the same dignity and respect
  • having a home within their community
  • being able to develop and maintain relationships and
  • getting the support they need to have a healthy, safe and fulfilling life. 

New ways of working are being established to help families get the right help at the right time. One example of this is a greater focus on the Care-Co-ordination role to help families access and understand the offers of support available to them across health and social care systems.

More details can be found on the learning disabilities page on the NHS England website.

The Council for Disabled Children have produced a transforming care information sheet to help children and young people understand the NHS England Transforming Care programme.

Education, Health and Care Plans

Health, education and social care systems are working hard to share pathways and processes that work together and are easier to understand.  An Education, Health and Care Plan (EHCP) will help families work with professionals based on an assessment of individual need.  

Care Education and Treatment Reviews

Where children or young people are at risk of a hospital admission a Care Education and Treatment Review (CETR) may be called by the family or professional. When a CETR  is called this means that the family and professionals all get together to review the needs and requirements of the young person and decide on the best next steps by working together. A clinical expert and a family member who has had similar experiences from another area will be present to help planning with fresh eyes.

Tools to help plan and understand the process:

Annual Health Checks

All people with a learning disability aged 14 and above are entitled to an annual health check. This is usually with the GP or practice nurse.

The annual health check is important because it can help identify any health problems before they get worse, and help adults and young people to receive the care that they need. The Health Check also includes a health plan which will give information on how to say healthy and make recommendations for other referrals if they are needed. 

The annual health check is recommended in the SEND Code of Practice guide for health professionals.

NHS England are working to make sure that more people are receiving a health check. If you think you or someone you know should have an annual health check, you can contact your GP surgery to arrange one.

More information on annual health checks is available from Mencap

STOMP

(Stop Over Medicating People with a Learning Disability and or Autism)

NHS England is leading a campaign to help people understand more about medication for people with learning disabilities. A report in July 2015 found that many people with a learning disability and or Autism are being given strong medication when they don’t really need it. 

These medicines are called ‘psychotropics’. Some people are prescribed this medication to try to manage behaviours that challenge. The medication can be very useful for treating mental illness such as psychosis or depression. However there is no evidence that the medicines help stop ‘challenging behaviour’.

It is important that you don’t stop taking medicines without speaking to your doctor first.

If you are worried about medicines for yourself or someone that you know, you should talk to the person who prescribed them to you and ask for a medication review. This could be your GP, Specialist Doctor, pharmacist or nurse prescriber.

More information about STOMP